What to Do After a Breast Cancer Diagnosis
As published in Sedona Monthly Magazine
Navigating Breast Cancer
Navigating a breast cancer diagnosis is a journey fraught with complex emotions, challenging decisions, and a multitude of uncertainties. From the initial shock of hearing the diagnosis to grappling with treatment options and facing the possibility of life-altering changes, individuals thrust into this realm find themselves navigating uncharted territory. In this Q&A with Dr. S. Brenda Moorthy of the Comprehensive Breast Center of Arizona in Phoenix and her patient, breast cancer survivor, and Sedona resident, Magdalena Romanska., we delve into the multifaceted landscape of coping with a breast cancer diagnosis. We offering insights, resources, and strategies to empower those embarking on this daunting path. From understanding the medical intricacies to nurturing mental and emotional well-being, we aim to shed light on the journey ahead and provide a compass for navigating the challenges that lie in front of you.
If I have an abnormality on my mammogram, what is the next step and what timeline can I expect?
Typically, additional mammogram films will likely be required as well as an ultrasound. Not everyone who has an abnormal mammogram needs a biopsy, but if you do, you can typically expect to be seen within a couple of weeks. In our community, biopsy results should come back in approximately two business days. If you haven’t heard back after two days, it is absolutely okay to call your doctor and ask. Don’t be afraid to be your own best advocate!
Magdalena: After my first abnormal mammogram, I had my follow-up mammograms within three weeks, which was so long to wait! However, my initial appointment was three months away, and I had to insist that I be scheduled sooner.
Dr. Moorthy: I agree that calling to try and move up your appointment is the correct next step. You should not fall into the false sense of security that a scheduler knows when you need to be seen. It is important to insist on being seen on time.
If I am diagnosed with breast cancer, how do I get connected with a breast surgeon?
Every community is different, but typically your primary care doctor will refer you to a breast surgeon. You can always request a particular surgeon if you have someone you trust. Depending on your insurance, you may need a referral if you want to see a particular surgeon, or in rare cases, you may need to choose a different surgeon in your network.
How long will it take to get my first appointment with a surgeon?
For newly diagnosed breast cancer, CBCAZ surgeons try to see a patient within three to five business days. However, this may vary depending on where you go and how other surgeon’s offices function.
M: When CBCAZ staff heard about my diagnosis, I was seen by you within a day and a half, which was amazingly fast and so reassuring!
DM: I do try and see patients as quickly as possible. I am glad I could see you so soon!
What should I bring to my first appointment with my surgeon?
A referral
A full pathology report
All imaging of both breasts*
A full list of your medications with dosages
Family history of breast, ovarian, colon, and pancreatic cancer diagnoses with ages at the time of diagnosis and genetic testing results
A friend or family member for support. You can also call them on speaker during your appointment to have two sets of ears taking in the new information.
*Your surgeon cannot fully evaluate your case without all films and not just the report from the imaging. Most imaging centers will provide you with a CD of your images if you ask for it. Be sure to test the CD to make sure it works properly. Don’t assume a surgeon’s office will have access to your records. We can obtain them after your visit, but it can delay your care when your records aren’t there for your first appointment.
M: It was not easy to obtain my films. I was asked to fax requests and oftentimes could not confirm that my CD was on its way for days at a time.
DM: If there are persistent issues, our office staff is always happy to help.
Do I need a second opinion?
Not necessarily. Breast cancer is a fairly common cancer, so if you are comfortable with your team, the information makes sense to you, and you communicate well with your providers, a second opinion is not necessary. At the CBCAZ Multidisciplinary Clinic, we have multiple specialists working together for your health, so if your case is complex, we will present the case at our meeting to determine the best possible path forward.
How long will I have to wait until I have a treatment plan?
There are two types of plans associated with cancer care: immediate and long-term. Once all of your testing is done (mammogram, biopsy, and in some cases, MRI and genetic testing), an immediate plan can be made. If you don’t have every test result by your first visit, you can typically complete them within a week or two. The long-term plan might shift as we learn more during surgery, see your body’s response to chemotherapy, and receive genetic testing results. At CBCAZ, we won’t stop collecting information to make sure your care is tailored to your best health outcomes. At our Multi-Disciplinary Clinic, your chemo, radiation, and surgical care is managed under the same roof with a team of specialists working closely together. This helps streamline the process and ensure your team is on the same page as your plan is adapted to suit your needs.
When I see a surgeon, what can I expect?
Your surgeon will want to know about your medical history, family history, and medications. We do a physical exam where your breasts and lymph nodes are examined. Imaging and pathology reports are reviewed with you. We then formulate the next steps. They’ll help you determine a treatment plan and discuss treatment options like surgery, radiation, hormone blockers, and potential chemotherapy. If additional tests need to be done, your surgeon will order them. You can imagine your surgeon as the ship's captain–they’ll give referrals to the rest of your team to make sure your treatment plan runs smoothly.
